Find our statements and responses to events affecting people with cystic fibrosis (CF) here.
In this section
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Statement on the Coronavirus Outbreak from the UK CF Medical Association (29 January 2020)
The Cystic Fibrosis Trust's Safeguarding policy statement (November 2019)
Letter to Petitions Committee from the Cystic Fibrosis Trust (11 June 2019)
Letter from David Ramsden, Chief Executive, to Dr Sarah Wollaston MP in response to NHS, NICE and Vertex correspondence (4 June 2019)
Statement on the NHS offer to Vertex for Orkambi and Symkevi (23 May 2019)
Letter from Ian Austin MP to Prime Minister Theresa May (16 May 2019)
Marking the anniversary of PM Theresa May wishing for a "speedy resolution" on Orkambi (16 May 2019)
Cystic Fibrosis Trust calls for immediate access to life-saving drugs (7 March 2019)
Creon shortage - Oxfordshire & Surrey (26 July 2018)
Mylan announces temporary Creon shortage (12 June 2018)
Cystic Fibrosis Trust appoints David Ramsden as new Chief Executive (12 October 2016)
The Cystic Fibrosis Trust's response to the NHS England decision that complex heart surgery should no longer be provided at the Royal Brompton & Harefield NHS Foundation Trust (8 July 2016).
The Cystic Fibrosis Trust's response to the NHS England funding decision for Ivacaftor (Kalydeco) for two to five year olds (4 August 2016).
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Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are around 10,500 people living with it in the UK.
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