The Cystic Fibrosis Trust simply couldn’t do what it does without you. In our fight for a life unlimited by cystic fibrosis we are extremely lucky and grateful to have the support of our amazing volunteers who give up their time and money to support our cause. Many of these wonderful people have kindly developed some exciting supporter initiatives to help raise additional funds in aid of the Trust. Take a look at the array of items below and see if anything takes your fancy!
If you have a fundraising initiative that you would like us to promote, your Community Fundraiser would love to hear from you.
Thank you so much for all your support!
Breathe With Me
Breathe With Me is a new release by emerging Indie pop artist Betsa, that aims to focus public attention on cystic fibrosis (CF) and the campaign for access to new precision medicines on the NHS.
Well-known music producer Simon Ellis (who has worked with artists like S Club 7, Britney Spears, The Spice Girls) produced Breathe With Me. He had also previously worked with Betsa and when he approached her to perform on the track she was delighted to volunteer her services for such a good cause.
The resultant song is an upbeat number, with a video that features people who are living with cystic fibrosis including Veronica Lanzetta, who had a double lung transplant in 2015.
“The song is about understanding and relating to what others might be going through. In this video I had diseased lungs painted on my back” said Veronica. “The front of me was painted with beautiful roses, to signify new life and hope after my transplant, and also because ’65 roses’ is a symbol that is used often in the CF world. Young children find it difficult to pronounce cystic fibrosis – one little boy called it 65 roses and the phrase stuck.”
“We hope that the cystic fibrosis community will find many innovative ways to let people view the YouTube video for ‘Breathe With Me’ – They can share it on social media, play it at events and if anyone has contacts with local radio – perhaps they can also ask for it to be played on their local station.”
Elizabeth Sheahan (15) also took part in the video because she is putting her all into advocating for access to cystic fibrosis precision medicine. Her scenes were filmed underwater – an apt location to remind people of the panicky feeling of being unable to breathe as normal.
Eight-year-old Emma Frank was filmed blowing bubbles (a visual way to show breath). Some of the bubbles that she blows in the video have the ‘No More CF Angels’ rose image in them - an image used often in the campaign for access to CF precision medicine.
Seasoned CF campaigner little Ivy Weir (5) also has a cameo role in the video.
Breathe With Me website.
It's Just Our New Normal - Grace McKenzie
Kirsty Harvey - An Inspirational Life
Order a copy
Andrew Alan Matthews art
Artist Andrew Alan Matthews is raising funds for the Cystic Fibrosis Trust in support of his close family members who have the condition. He has produced a range of modern cityscape paintings on canvas and a range of t-shirts. For each t-shirt sold, £1 comes to Trust, and with every canvas painting sold £5 is donated to the Trust.
Paintings can be commissioned, and prices start from £100 where a proportion would go to Cystic Fibrosis Trust.
Andrew has sold artwork to companies and private collectors and is a bestselling artist on the online platform Artgallery.
If you would love one of these modern cityscape paintings or any t-shirts please go to andrewalanmatthews.co.uk where you can see further examples of his fabulous work.
See Your City
To find out more, visit their website.
Our amazing supporter Sheila McAdam lovingly paints and designs bespoke watercolours of flowers and certain wildlife. Each individual piece is made in support of Sheila’s beautiful great niece Freya who has cystic fibrosis, with all profits kindly donated to the Cystic Fibrosis Trust.
Paintings can be commissioned of any flower and prices start at £100, with postage and packaging as extra.
All paintings are sent mounted with a backing board and cover sleeve. They measure approx. 20in x 16in
If you would love one of these beautiful and individual pieces contact McAdam Art or visit Sheila's Facebook page, where you can see further examples of her work.
Games to Create the Football Thinker
Games to Create the Football Thinker is a great value football coaching/training handbook that will bring an extra dimension to your football coaching sessions.
A handy 110-page digital book it is easily accessible for a busy coach on their mobile device.
Full of inventive ideas on how to really get your players thinking about, and enjoying, your training session, it replays famous moments in football, and enables you to create new, fresh sessions. This book will be a useful reference both before and during your coaching session.
ALL proceeds from the sale of this book will go to the Cystic Fibrosis Trust.
Head over to Ebay to purchase the book - you will receive a PDF (45MB) file.
Banana Crumble is a family-run business that wants to give back to others in the wider community. What you see is what you get - Banana Crumble is a free prize cash draw, made possible by using advertising revenue to fund prizes. visit their website.
. To find out more and to sign up, please
PLEASE NOTE: you must be over the age of 18 to participate.
Charity Car is a scheme backed by CarTakeBack, the UK's largest car recycling network. Head to the Charity Car website, and select the Cystic Fibrosis Trust as your chosen charity - the Trust will receive 100% of the car's scrap value, and if there's enough life left in your car, Charity Car will raise the maximum value through auction!
Do something really special and join the thousands of people who have already donated their car.
Reusable cotton tote bags
We are so excited to share, on behalf of the South Lincs branch of the Cystic Fibrosis Trust, this fantastic reusable cotton tote bag. 100% of the proceeds will be donated to the Trust to help us continue our fight for a life unlimited by cystic fibrosis.
The duck is a symbol of remembrance for a very dear lady lost to cystic fibrosis. Helen Bond was a founding member of the South Lincs branch of the Cystic Fibrosis Trust. She was an avid collector of rubber ducks with over 100 different pieces in her collection! She lost her battle with cystic fibrosis in December 2014, aged just 28 years. The continued use of the rubber duck keeps her memory alive to all those who knew her, and helps the South Lincs branch spread awareness of the condition.
If you would like to get your hands on one of these limited edition bags (currently only 1,000 in circulation), please get in touch with the South Lincs branch directly by private messaging their South Lincs Facebook page.
Bags cost just £3 each plus postage and packaging.
The lovely team at My Cupcake Toppers have kindly agreed a reduced rate for our supporters to purchase either rice paper or edible icing cupcake toppers! They start from £1 (+ postage and packaging) and are available in two designs - 'Cystic Fibrosis Trust' logo, or 'Cystic Fibrosis why we're baking'. Head over to My Cupcake Toppers to order yours now, or call them on 0800 043 4557 or drop them an email.
Duck pin badges
We're happy to share these gorgeous duck pin badges on behalf of the South Lincs branch of the Cystic Fibrosis Trust. 100% of the proceeds will support our fight for a life unlimited by cystic fibrosis. The duck is a symbol of remembrance for a very special lady lost to cystic fibrosis, Helen Bond. Helen was a founding member of the South Lincs branch - and an avid collector of rubber ducks! She lost her battle in December 2014 aged just 28 years old. The rubber duck keeps her memory alive and helps the branch spread awareness of the condition. To get hold of your very own duck pin badge, send a private message to the South Lincs branch Facebook page.
Etsy knitted toys
Lesley & Julie from Rugby have set up their own shop on Etsy, selling their handmade knitted toys with 100% of the sale price coming to the Cystic Fibrosis Trust. To order yours today just head to their page on Etsy.
Wristbands for cystic fibrosis
A new style of wristband has been designed and produced to raise funds for the Cystic Fibrosis Trust.
The Apter family along with a group of friends have produced the wristband to raise funds for the Trust in memory of their lovely son James. James had cystic fibrosis and was also diagnosed with leukemia in April 2011. He lost his battle against leukemia on 8 September 2011. Selling the wristbands will keep James' memory alive whilst raising funds for a charity that is very close to his family's hearts. Order your wristband today.
Mr & Mrs Creepy have been in business since May 2013, sculpting these creepily cute creations from polymer clay. With lots of creepy characters and Plushy creations to choose from you’ll be spoilt for choice. Why not treat your family and friends to their very own Creepy? Five per cent of each sale goes to the Cystic Fibrosis Trust!
These Are Our Days
A song performed by St Aidan's CE High School, Harrogate to raise funds to support the Cystic Fibrosis Trust, in memory of former St Aidan's student Helen Hawcroft. Download from iTunes. All proceeds will be donated to the Trust..
The Little Cook Book
'The Little Cook Book' written by Alex Sayers for her son Enzo has already raised over £13,000 for the Trust. The cook book was inspired by meals savoured during a childhood spent in Italy watching her Italian grandmother in the kitchen.
The easy to follow recipes include 'Nonna Lisa's Meat Balls', 'Italian Chicken', 'Creamy Mushroom Pasta', 'Sausage Bake' and many more tempting recipes.
TV Chef Gino D'Acampo has also contributed two recipes as well as personal trainer Ben Mudge.
The cook book is still available at £10 with all proceeds going directly to the Trust.
Please contact Alex Sayers via email at firstname.lastname@example.org.
Portraits of cystic fibrosis book
Photographer Simon Wiffen's book '47 / A Life With Cystic Fibrosis' is a collection of intimate and compelling portraits, exploring the realities of living with cystic fibrosis.
Each subject featured in the book offers their insight into life and the condition.
For each copy sold, £5 will be donated to the Cystic Fibrosis Trust. The book is available to order from Simon's website for £20.